Understanding Congenital Heart Disease: Causes, Symptoms, and Treatments

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Congenital heart defects refer to defects in the heart that children are born with. These are one of the most common congenital defects globally. In India too, 200,000+ children are born with a congenital heart defect (CHD). These are the numbers of the cases that are recorded – there maybe many more which go undiagnosed and hence untreated. Only 25 per cent of the children diagnosed with a congenital heart defect are able to get the required treatment. A lack of awareness and access to resources are the biggest challenges in children getting timely treatment. Organisations like Genesis Foundation, a congenital heart foundation India has been taking steps to both build awareness and provide financial treatment to those who cannot afford the cost of treatment. The treatment for CHD is expensive and families that do not earn enough to meet their daily needs have to depend on funds they receive as a congenital heart disease donation to support the treatment. Symptoms of Congenital Heart
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The Smallest Baby to be Operated Upon in India for a Heart Disorder

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Thank God for the Small Miracles! 

Shiv

Seventeen years is how long Lalmati and Mohanlal had waited for a child to be born to them. Their happiness knew no bounds when Lalmati’s pregnancy was confirmed. They couldn’t wait to meet their little bundle of joy, and it seems, neither could he, for their little son, born at 28 weeks, was born 12 weeks premature, in his impatience to cuddle with his loving parents. 


The premature birth itself was a terrifying ordeal for the family, with their tiny baby weighing only a kilogram, and it meant constant vigilance by doctors in the intensive care unit. He was being treated in a level III intensive care unit, under the care of vigilant neonatologists. Over the next 23 days, Shiv, as he was named by his parents, continued to lose weight despite tube feeding and the best of care afforded by the doctors. He was finally diagnosed as having a heart disorder known as patent ductus arteriosus(PDA). PDA occurs when there is an unwanted connection between the two major blood vessels of the heart; the aorta, and the pulmonary artery. Due to this connection, oxygenated blood from the aorta is shunted into the pulmonary artery, depriving the body of oxygen rich blood. Thus often these children face health problems that impede their growth, and in some cases even succumb to further complications. 


What makes this case unique is that, at 900 grams, Shiv happens to be the smallest baby in India to undergo PDA device closure. Thus today, not only is he a miracle for his parents, but also for the medical fraternity in the country. Genesis Foundation, is blessed to have been a part of his record recovery and helping this littlest of hearts find its beat in the world.

We have supported over 1450 critically ill under-privileged children, from families with a monthly income of less than Rs 10,000 ($150) per month



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