Hearts Behind the Foundation: The Heart Whisperer

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My association with Genesis Foundation began in 2024. I feel so blessed to be a part of such noble work that looks only at child heart treatment. An opportunity to create meaningful change in the world. Stepping into the lives of individuals and community and giving them the best you can. I am grateful that through this field I have the power to uplift those who are struggling or are in need, in ways either by giving my heart and soul to the project or to create avenues for donation to charity that I am involved with. My first visit to the hospital to see a 5 month old baby in terrible pain, but a smile on her face left me with a flood of emotions through my mind. Since my school days I have been inclined towards helping others and most importantly giving back to society. I had participated in different social events but never ever had given a thought of taking this on as a career. My story of being a social worker was not meant to be, but yes destiny always pans out the way it’s suppo...

The Smallest Baby to be Operated Upon in India for a Heart Disorder

Thank God for the Small Miracles! 

Shiv

Seventeen years is how long Lalmati and Mohanlal had waited for a child to be born to them. Their happiness knew no bounds when Lalmati’s pregnancy was confirmed. They couldn’t wait to meet their little bundle of joy, and it seems, neither could he, for their little son, born at 28 weeks, was born 12 weeks premature, in his impatience to cuddle with his loving parents. 


The premature birth itself was a terrifying ordeal for the family, with their tiny baby weighing only a kilogram, and it meant constant vigilance by doctors in the intensive care unit. He was being treated in a level III intensive care unit, under the care of vigilant neonatologists. Over the next 23 days, Shiv, as he was named by his parents, continued to lose weight despite tube feeding and the best of care afforded by the doctors. He was finally diagnosed as having a heart disorder known as patent ductus arteriosus(PDA). PDA occurs when there is an unwanted connection between the two major blood vessels of the heart; the aorta, and the pulmonary artery. Due to this connection, oxygenated blood from the aorta is shunted into the pulmonary artery, depriving the body of oxygen rich blood. Thus often these children face health problems that impede their growth, and in some cases even succumb to further complications. 


What makes this case unique is that, at 900 grams, Shiv happens to be the smallest baby in India to undergo PDA device closure. Thus today, not only is he a miracle for his parents, but also for the medical fraternity in the country. Genesis Foundation, is blessed to have been a part of his record recovery and helping this littlest of hearts find its beat in the world.

We have supported over 1450 critically ill under-privileged children, from families with a monthly income of less than Rs 10,000 ($150) per month



Comments

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