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Showing posts from October, 2020

Understanding Congenital Heart Disease: Causes, Symptoms, and Treatments

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Congenital heart defects refer to defects in the heart that children are born with. These are one of the most common congenital defects globally. In India too, 200,000+ children are born with a congenital heart defect (CHD). These are the numbers of the cases that are recorded – there maybe many more which go undiagnosed and hence untreated. Only 25 per cent of the children diagnosed with a congenital heart defect are able to get the required treatment. A lack of awareness and access to resources are the biggest challenges in children getting timely treatment. Organisations like Genesis Foundation, a congenital heart foundation India has been taking steps to both build awareness and provide financial treatment to those who cannot afford the cost of treatment. The treatment for CHD is expensive and families that do not earn enough to meet their daily needs have to depend on funds they receive as a congenital heart disease donation to support the treatment. Symptoms of Congenital Heart
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What are the challenges for parents of children with CHD?

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​​​​The first expectation from a pregnancy for all parents is a healthy baby. And along with that, there is a mix of emotions ranging from confusion, joy, fear, sadness etc. When any parents are told the news that their child has a heart defect, a can of uncertainties open up. We are a children heart foundation in India that works towards helping critically ill-underprivileged children who are diagnosed with Congenital Heart Defects. We meet and counsel such parents on an everyday basis. What are Congenital Heart Defects? · A congenital heart defect (CHD) is a problem with the structure of the heart. It is present at birth. Congenital heart defects are the most common type of birth defect. The defects can involve the walls of the heart, the valves of the heart, the arteries and veins near the heart. · It affects 9 out of every 1000 new-borns in India. · Every year, over 2,20,000 children are diagnosed with CHD in India. Nearly 1,80,000 out of these are born with critical congenital hea
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Location: Gurugram, Haryana, India
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Genesis Foundation & The work we do: Saving Critically Ill Children

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We are a non-governmental organization that is based in Gurgaon, India. We help children who have been diagnosed with Congenital Heart Defects by ensuring they can get adequate medical care. Our work involves saving critically ill children between 0-18 years of age who come from lesser-privileged backgrounds. The Story behind the Foundation Jyoti Sagar and his wife Prema Sagar lost their son Sameer, who was born on December 20, 1983, to a congenital heart defect, almost 37 years ago. As grieving parents, they felt shattered by their loss. Beginning to volunteer at Missionaries of Charity felt like a step in the right direction, enriching the lives of others and healing their own. Eventually after finding solace in philanthropy, they turned around their loss into the genesis of the Foundation in 2001. Genesis Foundation began supporting children suffering from a variety of critical medical conditions in the areas of cancer, heart, organ failure, thalassemia and extreme deformities. But
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