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Understanding Congenital Heart Disease: Causes, Symptoms, and Treatments

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Congenital heart defects refer to defects in the heart that children are born with. These are one of the most common congenital defects globally. In India too, 200,000+ children are born with a congenital heart defect (CHD). These are the numbers of the cases that are recorded – there maybe many more which go undiagnosed and hence untreated. Only 25 per cent of the children diagnosed with a congenital heart defect are able to get the required treatment. A lack of awareness and access to resources are the biggest challenges in children getting timely treatment. Organisations like Genesis Foundation, a congenital heart foundation India has been taking steps to both build awareness and provide financial treatment to those who cannot afford the cost of treatment. The treatment for CHD is expensive and families that do not earn enough to meet their daily needs have to depend on funds they receive as a congenital heart disease donation to support the treatment. Symptoms of Congenital Heart

Familiar Faces with CHD and their Journey- Valerie Azlynn

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How many kids have you heard about, who had to go through open-heart surgery at the age of 13?  Did she survive? Well, she is ruling the hearts of people. Famous for her role in the hit ‘Big Bang Theory’, she was born on November 25, 1980, in New London, Connecticut.  Valerie Azlynn is a well-known American actresses who is famous for her marvelous work on and off the screen. She has been a part of many television shows and movies and many of us also know her from the famous TV comedy Sullivan & Son. But did you know there was a chance that we would have never seen her in the movies or in fact there was a small chance that she wouldn’t be alive right now?  Shocked right? At the age of 13, Valerie and her parents found out that she was suffering from an Atrial Septal Defect, a type of Congenital heart defect in which more blood flow is directed towards the lungs which can overfill the lungs and overwork the right side of the heart making it weak. At the age of 13, Valerie’s thoughts

Top 10 hospitals for Congenital Heart Disease Treatment

The number of hospitals offering Congenital Heart Disease Treatment in India is slowly increasing. In the early and mid-1990’s there were only a few hospitals offering treatment, but with advancing technologies and a greater need for such niche treatment, there are around 50 hospitals both in the private and government sector offering Congenital Heart Disease Treatment for children who are born with heart defects.  Here are the top 10 hospitals for child heart surgery in India: 1. Madras Medical Mission is the first hospital in India in the private sector to treat children with Congenital Heart Defects. The hospital was founded in 1982 by well-known Pediatric Cardiac Surgeon, Dr K M Cherian. The hospital is in Chennai. It is well equipped to handle all sorts of Congenital Heart Defects and around 400 pediatric open-heart surgeries to 500 cardiac Cath Interventions are done per year. Dr K Shivakumar is the Head of Department of Pediatric Cardiology.  Click here  to connect with them.

Top 5 Health Tips for Dads on Father's Day

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The second wave of Covid-19 has been difficult for a lot of people. To say the least, it has made most of us realize the value of having a healthy body and appreciating all that it does for us. As an NGO working for CHD in the healthcare sector, we know the role fathers play in the lives of their children. From ensuring that their child gets the best medical treatment to following up with diet and nutrition appointments, fathers do so much! This Father’s Day is the perfect opportunity to celebrate them and remind them that their health is our priority too! Since most of us including our fathers, have been spending more time at home, it has led to a decrease in physical activity which can have an adverse effect on their health. It is our role to make sure our dads and grandads live healthy lives by supporting and motivating them to make better choices about their own health. So, on this Father's Day, here are some health tips for dads to maintain a healthier lifestyle. 1. Get regul

Stories of Courage: Priyansh Amit

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 The current pandemic of the novel coronavirus (COVID-19) is a difficult time for everyone. This has rapidly affected our day to day life, business, employment and overall presents an unprecedented challenge to public health. But amid a disconcerting pandemic on 3rd December 2020, Amit and Priyanka, residents from Palghar, Maharashtra were over the moon as their little bundle of joy arrived at 11.30 pm. The baby boy was delivered at Rural Hospital in a city called Mahad (their hometown) in Raigad district. The family’s happiness knew no bounds as Amit’s parents began calling everyone to give them the good news and sent pictures of the little one. Then everything changed after a month when their son, Priyanshatonly six and a half weeks old, struggled to drink milk and suffered from reflux. He would be sick after each feed and was barely gaining any weight.Priyansh’s condition wasn’t picked up at ante-natal scans or soon after birth and now his condition was a growing concern for bot

Ed Helms won over Congenital Heart Defect

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Ed Helms is a real-life hero and an inspiration for children who suffer from Congenital Heart Defects. Anybody can make donation for children suffering in India by scanning this QR code. Who can forget the iconic Stu (Stuart Price) in the Hangover trilogy or Andy Bernard from The Office? Played by Ed Helms, his characters are often unforgettable owing to his brilliant acting. Ed Helms was born on January 24, 1974, in Atlanta, Georgia, USA. His full name is Edward Parker Helms and he is an actor, who is known for movies like, The Hangover, The Office and Vacation. He has done a lot of voiceover work for companies like Burger King, Lycos and CDnow.com etc.  He graduated from Oberlin College and studied at the Upright Citizens Brigade. He has lived in New York City for 10 years now and knows English as well as other languages like a little amount of Northern Irish, German, Dutch and French.  Being the supremely talented artist he is, he also plays bluegrass guitar and banjo in various ba

Little Nafisa overcomes Pulmonary Stenosis through CSR support for healthcare

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This is the story of a sweet little Angel named Nafisa Khatun. Her parents Rashida and Manirul hail from Basirhat, West Bengal but they shifted to Pune, Maharashtra for better living conditions for their family. With a hard-earned income of Rs 9,000 per month Manirul worked as a construction labourer. Due to the COVID -19 pandemic last year, Manirul and his family went back to their hometown in West Bengal. Big sisters, Tanisha and Anisha were excited that their mom was going to have another baby. Rashida delivered her daughter at a district hospital in Basirhat on August 16, 2020. In this distraught time of Covid, Nafisa brought immense joy to the family and she looked like the perfect little baby girl. Post-discharge from the district hospital, Rashida and Manirul brought their daughter home. In the later part of the year when the COVID-19 situation felt better, Manirul and his family decided to leave for Pune and resume work as transportation were also running.  As Nafisa was growin

Types of Heart Surgery

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Heart-related problems do not always require surgery. Sometimes they can be addressed with lifestyle changes, medications or nonsurgical procedures. But surgery is often needed to address problems such as heart failure, plaque buildup that partially or totally blocks blood flow in a coronary artery, faulty heart valves, dilated or diseased major blood vessels (such as the aorta) and abnormal heart anamolies that might require congenital heart disease treatment . There are many types of heart surgery. 1. Coronary artery bypass graft surgery (CABG)  It is a procedure used to treat coronary artery disease in certain circumstances. Coronary Artery Disease (CAD) is the narrowing of the coronary arteries (the blood vessels that supply oxygen and nutrients to the heart muscle), caused by a buildup of fatty material within the walls of the arteries. This buildup causes the inside of the arteries to become rough and narrowed, limiting the supply of oxygen-rich blood to the heart muscle. One way

Aarohi’s Story of Strength

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This is the story of a sweet little angel named Aarohi Saini! Aarohi is the only daughter of Pinki Saini and Vinod Saini. The family lives in Galod, Rajasthan. On 31st May 2020 Pinki and Vinod welcomed their little angel Aarohi into their life. Aarohi’s smile would light up the world for Pinki and Vinod and everything was going on perfectly smooth in their life. As a first-time parent hearing their daughter’s first cry and holding her in their arms for the first time was the most beautiful moments of their lives.  Aarohi’s congenital heart defect was not discovered until Aarohi was about four months old. During the first three months of her life, Aarohi, began to lose weight and was experiencing extremely labored breathing. The couple began to worry and the very next day Vinod rushed his daughter to the local clinic. At the local hospital, Vinod and Pinki were informed that Aarohi has pneumonia so Pinki began medication routine as advised by the doctor but Aarohi’s condition remained u

Why are people scared to donate and how to win them over

We live in a society where some people are always there to help the needy people while others are willing to give but scared because they’re clueless about the methods of donation or scared of being fooled into fake causes. As middle class Indians, we are led to believe that most NGOs are a scam and the proportion of funds actually reaching the intended people is way too less.  Those of us who feel like doing some social work in other ways, choose the route of volunteering – teaching poor kids, feeding people at an orphanage or a temple, and so on. There is no doubt that the gratification of a real interaction beats donating money via “unreliable” organisations every time. But the truth is that there is never going to be a zero-corruption mechanism for aid delivery. Moreover, for working professionals, it is hard to volunteer personally with any regularity. To stay away from charity for fear of corruption is like staying away from driving for fear of traffic jams. Beyond a point, you h