Hearts Behind the Foundation: The Heart Whisperer

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My association with Genesis Foundation began in 2024. I feel so blessed to be a part of such noble work that looks only at child heart treatment. An opportunity to create meaningful change in the world. Stepping into the lives of individuals and community and giving them the best you can. I am grateful that through this field I have the power to uplift those who are struggling or are in need, in ways either by giving my heart and soul to the project or to create avenues for donation to charity that I am involved with. My first visit to the hospital to see a 5 month old baby in terrible pain, but a smile on her face left me with a flood of emotions through my mind. Since my school days I have been inclined towards helping others and most importantly giving back to society. I had participated in different social events but never ever had given a thought of taking this on as a career. My story of being a social worker was not meant to be, but yes destiny always pans out the way it’s suppo...

Reaching Out to Those in Need – What You Can Do To Help a Family With a Child who has a Congenital Heart Defect.

There are times in our lives, when we seem to have settled down professionally and personally and we think of helping others in some way or the other. At other times there are occasions in our families, milestones, like birthdays or anniversaries where we feel like helping someone who has not been as fortunate as us and look for areas where we can provide support.

Donation for children is one area that immediately comes to the forefront during such times. Many underprivileged children in countries like India, continue to fight many challenges in multiple areas such as education, health, nutrition, growth and development. Many children in particular, face challenges in accessing essential life saving interventions which can help save their lives. 

Congenital heart defects is one such area where many children continue to be deprived of access to important interventions only because their families did not have the money 

to support the treatment. Congenital heart defects are one of the leading birth defects. This means that children are born with a defect in their heart which impacts the way it functions and hence the way the child may grow


and develop. 25% of all children born with a congenital heart defect have a critical defect implying that they need to be treated within the first year of their life to be able to survive. In developing countries, pediatric cardiac care centers are not many and those that are there are not evenly distributed. Most of these centers are in the private sector where the cost of treatment of a heart defect is extremely high. The government hospitals also provide facilities but very often there is a long waiting involved very often leading to adverse consequences for the child and sometimes even death. It is here that donation for heart surgery assumes critical importance. 

In addition to donation for heart surgery, there are many ways that we can reach out to children who are born with a heart defect: 

1) Help the family connect to a hospital: as a first step it is good to see if the family of the child has connected with a good hospital that has the facilities to help the child. One can speak with the hospital team to understand what kind of support is needed for the child and whether or not the hospital can provide that. 

2) Connect the family to a Foundation or NGO working with children who have a heart defect. These NGOs help raise donations for heart surgery and can help support the treatment for the child.  

3) Check with the family to see if they understand what is the defect, what is the treatment process and what all is required during the treatment and post the treatment 

4) Remain in touch with the family and encourage them to remain in touch with the concerned doctor’s team and follow all advice.

5) Speak to friends and family to see if they are interested in providing donation for children who are born with a heart defect. They could donate toys, stationary, and other things that the child can use. 


 

6) Volunteer to visit the child and play with the child post the surgery to help the child feel better.

7) Start a fundraiser: one can also help the family by starting a fundraiser to help with the donation for heart surgery. 

 

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