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Providing Lifesaving Treatment for Children with Heart Defects – Start Donating Today

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  -Contributed by Aarohi Arora Shalini (name changed), a 10th-grade student from western India, had been feeling unusually tired, breathless, and uneasy for months. After several tests, doctors diagnosed her with a rare heart defect, Ruptured Sinus of Valsalva (RSOV) to the Right Atrium, along with heart failure and severe pulmonary hypertension. The condition required urgent treatment, but her mother, the sole earner, couldn’t afford it. With support from Genesis Foundation, Shalini received timely surgery at one of their   partner hospitals . She was discharged in stable condition and is now recovering well. This is one of the many lives Genesis Foundation strives to save through timely medical intervention and compassionate care. Genesis Foundation is an NGO in Haryana, working in the field of Congenital Heart Disease Donation , providing end-to-end support. They provide financial assistance to families with monthly income of under Rs.20,000. Over the last 24 years, they ha...

The role of NGOs in improving the congenital heart defects landscape in India

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Congenital Heart defects are the most common birth defects in the world and in India. And yet, not many people are aware of this leading defect both among the general masses and the medical fraternity which forms the first line of medical care servicing people across the country.  In India every year more than 200,000 children are born with a heart defect. The burden of disease is so massive that the management of this condition will require a collaborative effort by the Government, corporate sector, Children’s Healthcare Foundation and Non-Governmental Organizations (NGOS).  There are a few NGOs who have been working for the last many decades to create am impact in this often overlooked yet critical health concern. Genesis Foundation and the Children Heart Foundation are some of these. The main areas where these NGOs have been able to create a huge impact are: 1) Build Awareness: awareness about congenital heart defects is scanty amongst the general population. When this d...

Reaching Out to Those in Need – What You Can Do To Help a Family With a Child who has a Congenital Heart Defect.

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There are times in our lives, when we seem to have settled down professionally and personally and we think of helping others in some way or the other. At other times there are occasions in our families, milestones, like birthdays or anniversaries where we feel like helping someone who has not been as fortunate as us and look for areas where we can provide support. Donation for children is one area that immediately comes to the forefront during such times. Many underprivileged children in countries like India, continue to fight many challenges in multiple areas such as education, health, nutrition, growth and development. Many children in particular, face challenges in accessing essential life saving interventions which can help save their lives.  Congenital heart defects is one such area where many children continue to be deprived of access to important interventions only because their families did not have the money  to support the treatment. Congenital heart defects are one...

Things to Consider after your child goes through a treatment for a congenital heart defect

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  Congenital Heart Defects (CHDs) refer to conditions that arise because of an abnormality in the structure of the heart and therefore the way it functions. These are of different types and vary in the degree of severity. The treatment for congenital heart defects depends on the type of heart problem and how severe it is. Sometimes, the heart defect maybe minor and may not need any interventions. In the case of critical heart defects, the child will need to undergo a hole in heart treatment as soon as possible for the child to be able to survive and get better. In some types of defects, the intervention can be a heart hole treatment without surgery . As medical care and treatment has improved, children with CHDs are living longer and healthier lives. However, following a hole in heart treatment , ongoing care is important to ensure that children grow well and stay healthy. Some of the key things to consider after your child has been through a treatment for a Congenital Heart ...

The importance of new-born screening in Congenital Heart Defects

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Congenital Heart Defect (CHDs) are structural abnormalities of the heart present at the time of birth of a child.   CHDs are the most common cause of death due to congenital anomalies in the developed world. Although CHD include a wide spectrum of conditions, they can broadly be classified into critical CHD and non-critical CHD. Critical CHDs are those defects where failure to identify the condition within the first month after birth could potentially result in death or a significant disability. The critical CHDs include Pulmonary atresia, Severe Pulmonary stenosis or atresia, Hypoplastic left heart syndrome, Aortic stenosis, Transposition of Great arteries, Obstructed total anomalous pulmonary venous drainage and Severe coarctation. Timely diagnosis is critical to the effective treatment forcongenital heart defects . However, the clinical recognition of CHD in the newborn period is often challenging. This is because the symptom...

Does Covid-19 affect children with heart disease?

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In December 2019, the SARS-CoV-2 infection (COVID-19) was initially discovered in China as a new emerging disease. Subsequently, it has spread rapidly among other countries including Iran, and eventually, it was declared by the World Health Organization as a “pandemic” on 11th March 2020. The Health Ministry said that the common symptoms among children might include fever, cough, breathlessness or shortness of breath, fatigue, sore throat, myalgia (muscle pains, aches, pain in ligaments), rhinorrhea (excess drainage, ranging from a clear fluid to thick mucus from the nose), diarrhoea, loss of smell, loss of taste. Meanwhile, few children might also show symptoms of gastrointestinal issues. But having said that, it is also reported that the prevalence of symptoms is lower in children compared to adults. Coronary artery diseases, heart failure, and cardiac arrhythmia have been associated with increased mortality among adults with COVID-19. There is still a lack of knowledge and studies r...

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  जन्मजात   ह्र्दय   रोग  ( कंजेनिटल   हार्ट   डिजीज ):  देशभर   में   लगातार   हृदय   से   जुड़ी   बीमारियां   तेज़ी   से   बढ़   रही   हैं ,  एक   रिसर्च   के   अनुसार   भारत   में   हर   साल   लगभग   17  लाख   लोगों   की   मौत   केवल   दिल   से   संबंधित   रोगों   के   कारण   ही   होती   है ,  इसके   अलावा   हर  10  बच्चे   जन्मजात   हृदय   रोग   से   भी   पीड़ित   होते   हैं ,   जन्मजात   हृदय   रोग   के   कारण : जन्मजात   हृदय   रोग   एक   ऐसी   बीमारी   है   जो   नवजात   शिशुओं   में   जन्म   के   दौरान   से   ही   शरीर   में   मौजूद   होती   है।   ये   बीमारी   आगे   ...